Welcome to my virtual home!

This past year, Empowered Together piloted its two-sided online marketplace in New Haven. The pilot tested the hypothesis that customers living with disabilities and businesses desiring to attract these customers would gain value from the marketplace. The pilot also tested the hypothesis that the value gained by businesses would translate into revenue for Empowered Together. In short, the pilot disproved both hypotheses.  This means Empowered Together has come to an end. Last December I told my husband, John, that 2024 was going to be the make or break year for Empowered Together. At that point, the company had just enough cash to run the New Haven pilot. If that had been successful, I would've used the results to go out and fundraise in order to scale the marketplace to new business verticals and new locations. In the end, the product-market fit that had eluded Empowered Together proved to be its demise. Reflecting on this 1,264 day journey brings these insights, offered with hum...

The bullhorn sounded and he was off, swimming his heart out, across a 50m stretch of lake as deep as his arm is long. My youngest, William, competed in his third year of the  Race4Chase  triathlon in August. When we first applied, I reflected on how I hoped this triathlon camp would allow Will to do something that was entirely his. It would be an opportunity to spread his wings apart from his sister's influence. For siblings of kids living with disabilities, this kind of autonomy is life giving. Back at the lakeside, I was watching Will from a distance and ringing a cowbell like no ones business. Will ran up from the waterfront and we cheered him on. He transitioned to the bike portion and we cheered him on. When he came into view at the end of the bike and transitioned to the run, the final segment of the race, we cheered him on. All the while, that cowbell was clanging. When Will sprinted across the finish line, there was no stopping him (or the cowbell). Thinking about...

I watched the movie  Ezra  with a mom friend Sunday. In short, I commend it to you.  According to the trailer note, the film, "follows a stand-up comedian living with his father, while struggling to co-parent his autistic son Ezra with his ex-wife. When forced to confront difficult decisions about their son’s future, Max and Ezra embark on a cross-country road trip that has a transcendent impact on both their lives." If you're curious what I thought, read on and beware of spoilers. 😬 And here are the cast of characters for context: Ezra: autistic son Jenna: mom Max: dad Stan: grandpa and Max's dad This movie tackles a LOT in 100 minutes. . . Hyperbole: To tee it up properly, understand that the events in this film are over the top. If you go in expecting this kind of exaggeration, I think you'll be less flummoxed at how unbelievable it all is and can more readily see yourself and people you know in the characters. The hyperbole serves to get us thinking about the...

Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome  (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c...

We kicked off our New Haven pilot with a press release January 29th. That garnered a bit of media attention  and interest from users across the country when Disability Scoop picked up the story. I'm trying to stay laser focused on the goals of this pilot: 1) determining the critical mass of users and businesses necessary for the marketplace to be of interest to these two sides of the marketplace 2) refining a scalable business model (in plain speak, figure out how we'll make money) Even though I'm focused on New Haven, it's gratifying and validating to hear from users across the country that they want this resource in their town, too.  The online marketplace  is open to users everywhere to recommend businesses anywhere. While we're only doing accessibility reviews in New Haven right now, I'm dreaming up how to make our accessibility reviews scalable. That'll help us reach more geographies sooner.