Skip to main content

Startup Day 232

I wrote an email to my mailing list today and talked about a shift in focus to reach parents directly on social media. Because my updates are kept short (3 updates, 3 asks), I didn't delve into the "why" behind the shift. We like to celebrate the resounding successes rather than dwell on things that didn't work so well. The point of this blog series, however, is to delve into what works and what doesn't. 

Asking school clinicians and therapists to share Empowered Together with their families didn't work in the sense that it didn't result in requests to join Empowered Together.* Maybe those channels can be effective down the line but I couldn't crack the code to it right now. Where I was seeing requests to join was from a few facebook posts I made. Now that has me exploring the channel of social media and it makes sense when I think back to early customer discovery conversations. When I asked parents where they went to find support and answer kid-related questions, facebook was most commonly cited. None of the parents actually like facebook; it's impersonal and attracts gripers and "performative parents" who like to see their advice in print. But all the same, there's more than a critical mass of folks ready to offer their opinions so it does serve a useful purpose for parents. My idea is to go to where the parents are already going, parents who are willing to engage online and conversant with technology platforms, and offer a solution that might better meet their needs. It's a tricky approach because I respect facebook groups' rules and won't post self-promotion where it's not allowed. But it does pose an interesting angle on going direct-to-consumer.

Maybe next time I send an update, I'll blog about the "why" and share that, too, in case folks are interested in the longer story.

*I add this note to dispel any myth regarding conflict of interest. As background, this post originally appeared on 2/15/22. Fast forward to 12/7/22 and I (Sarah Spear) was appointed to my local Board of Education in order to play an active civic role in childhood education, an area of personal passion. During the intervening 10 months, Empowered Together focused on establishing enterprise partnerships with large, private institutions serving individuals with disabilities. Neither Empowered Together nor I are seeking school-based partnerships. Hopefully this makes clear that I serve on the Board of Education as a citizen who cares about our local school district and without any professional interest. For the latest on Empowered Together's services and model, please visit the website. (2/2/23)

Comments

Popular posts from this blog

Rare Disease Day 2024

Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome  (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c...

Startup Day 875: piloting in New Haven

Iteration is emblematic of startups. For example: From last year's pilot , we learned that parents and adults with disabilities were looking for recommended resources.  We built the Empowered Together app and tried crowd-sourcing those recommendations.  In our New Haven pilot, we're bringing database building in-house by listing accessible food, arts, and recreational businesses in greater New Haven.  Thankfully, we have thought partners in this endeavor at the City of New Haven and at community disability orgs. We are working with a Quinnipiac student and awaiting word on additional grant funding. We're taking the right next step in changing the social system to be accessible and inclusive of People with Disabilities.

How I Got a Blister from a Cowbell

The bullhorn sounded and he was off, swimming his heart out, across a 50m stretch of lake as deep as his arm is long. My youngest, William, competed in his third year of the  Race4Chase  triathlon in August. When we first applied, I reflected on how I hoped this triathlon camp would allow Will to do something that was entirely his. It would be an opportunity to spread his wings apart from his sister's influence. For siblings of kids living with disabilities, this kind of autonomy is life giving. Back at the lakeside, I was watching Will from a distance and ringing a cowbell like no ones business. Will ran up from the waterfront and we cheered him on. He transitioned to the bike portion and we cheered him on. When he came into view at the end of the bike and transitioned to the run, the final segment of the race, we cheered him on. All the while, that cowbell was clanging. When Will sprinted across the finish line, there was no stopping him (or the cowbell). Thinking about...