Yes, Kelly was right. The survey derived from a game of Apples to Apples where Kelly and I held that fundraising was more violent than Dracula (who Grant and John thought surely more violent than fundraising). Due to the low response rate, John might have to pose this question to his facebook friends. For a moment, however, consider those evening fundraising calls or images of opponents used to raise funds for political campaigns or the marketing tactics of organizations that prey upon the elderly. Surely those could be deemed violent, at least at times. Furthermore, fundraising really exists whereas Dracula is merely fictitious so any supposed violence is pretend. There. I rest my case.
Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c...
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