Skip to main content

typical

My trip to the Dept of Pharmaceuticals for an 11:30 appt with Davendra Chaudhary went like this:

11:20: Arrived at "Employee Gate" and denied entrance
11:22: Arrived at "General Gate" and waited then signed in
11:24: Arrived at Inner Entrance 2, scanned belongings, waited to sign in, and was told I had to Entrance 3
11:25: Arrived at Inner Entrance 3, waited to sign in, singed in, scanned belongings and proceeded to Davendra Chaudhary's office
11:30: Waited for elevator and went to Floor 3, was re-directed to Floor 2
11:33: Went to Ashok Kumar's office, found out he and Chaudhary were meeting inside and was re-directed to wait in Davendra Chaudhary's office on Floor 3
11:40: Found Davendra Chaudhary's office and was told to wait
11:42: Saw mouse run behind covered box in a poorly ventilated sitting area
11:50: Was summoned by Chaudhary's PA in the adjoining office area
11:55: "Peon" was sent to Ashok Kumar's office with note, explaining my presence in Chaudhary's office
11:57: "Peon" returned, explaining Kumar and Chaudhary could not see me
11:58: Chaudhary's PA told me to go home because Chaudhary had a noon appt and would not be able to see me. PA requested me to fax a request for a new mtng. I explained that Chaudhary had requested the mtng originally and I would return only once Chaudhary confirmed he did, in fact, want a meeting. I was asked, once again, to fax a request.
12:07: Auto driver agreed to drive me home for Rs 50
12:42: Missed call from Chaudhary's office
12:45: Auto driver gave me Rs 20 change on a Rs 100 bill, claiming he had told me Rs 80 when I got into the auto
1:01: I saw missed call and spoke with Chaudhary, requesting me to come for a mtng. I politely informed him I could not return today and requested another time. We scheduled for Wed.
1:15: Chaudhary's PA called back to inform me Wed is a holiday and to prepone the mtng to Mon, 11 AM

Round 2 commences Monday morning . . .

Comments

Popular posts from this blog

Rare Disease Day 2024

Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome  (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c...

Startup Day 875: piloting in New Haven

Iteration is emblematic of startups. For example: From last year's pilot , we learned that parents and adults with disabilities were looking for recommended resources.  We built the Empowered Together app and tried crowd-sourcing those recommendations.  In our New Haven pilot, we're bringing database building in-house by listing accessible food, arts, and recreational businesses in greater New Haven.  Thankfully, we have thought partners in this endeavor at the City of New Haven and at community disability orgs. We are working with a Quinnipiac student and awaiting word on additional grant funding. We're taking the right next step in changing the social system to be accessible and inclusive of People with Disabilities.

How I Got a Blister from a Cowbell

The bullhorn sounded and he was off, swimming his heart out, across a 50m stretch of lake as deep as his arm is long. My youngest, William, competed in his third year of the  Race4Chase  triathlon in August. When we first applied, I reflected on how I hoped this triathlon camp would allow Will to do something that was entirely his. It would be an opportunity to spread his wings apart from his sister's influence. For siblings of kids living with disabilities, this kind of autonomy is life giving. Back at the lakeside, I was watching Will from a distance and ringing a cowbell like no ones business. Will ran up from the waterfront and we cheered him on. He transitioned to the bike portion and we cheered him on. When he came into view at the end of the bike and transitioned to the run, the final segment of the race, we cheered him on. All the while, that cowbell was clanging. When Will sprinted across the finish line, there was no stopping him (or the cowbell). Thinking about...