Skip to main content

simplify

i told a friend today that's my motto of the week -- simplify -- if it doesn't have to happen this week, don't hope for it to happen. i've got my list going, organized by location of activity and tagged by day of activity. in case you didn't hear, i'm shipping out sat early am for nyc. while such transitions send me into manic mode, "simplify" is an attempt to enjoy every last moment.
on my auto ride this morning, my mind raced through the items already residing on my list then i realized that i've already recorded them so why not enjoy the sites and sounds around me, instead? i vacillate between exhaustion and extremely high energy. unfortunately, the high energy levels tend to kick in at 1am. perhaps that's the result of my body subconsciously preparing me to shift times zones.
i haven't listed anything out for you recently, so here's a top (fill in the blank) list:
  • i've been to bangalore, delhi, & hyderabad all in the past week and loved each of them
  • i'm ditching the "buy presents" plan, (remember: simplify). i hope my presence is presents enough.
  • i was involved in a high speed race to the airport monday which involved my friend jumping out of the vehicle and urging a bus to make way for us. it did.
  • i'm listening to a david crowder band cd right now and determined to finally make it back to church tonight after a lengthy, travel-induced hiatus. oh, i just realized the cd has been looping for 10 min, waiting for me to select play.
  • i'm planning to return at the end of summer so i get to pack up & store lots of stuff with a friend
  • i'm in exhaustion mode now, so i think i'll stop

Comments

Post a Comment

Popular posts from this blog

Rare Disease Day 2024

Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome  (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c...
1 comment
Read more

Startup Day 875: piloting in New Haven

Iteration is emblematic of startups. For example: From last year's pilot , we learned that parents and adults with disabilities were looking for recommended resources.  We built the Empowered Together app and tried crowd-sourcing those recommendations.  In our New Haven pilot, we're bringing database building in-house by listing accessible food, arts, and recreational businesses in greater New Haven.  Thankfully, we have thought partners in this endeavor at the City of New Haven and at community disability orgs. We are working with a Quinnipiac student and awaiting word on additional grant funding. We're taking the right next step in changing the social system to be accessible and inclusive of People with Disabilities.
Post a Comment
Read more

How I Got a Blister from a Cowbell

The bullhorn sounded and he was off, swimming his heart out, across a 50m stretch of lake as deep as his arm is long. My youngest, William, competed in his third year of the  Race4Chase  triathlon in August. When we first applied, I reflected on how I hoped this triathlon camp would allow Will to do something that was entirely his. It would be an opportunity to spread his wings apart from his sister's influence. For siblings of kids living with disabilities, this kind of autonomy is life giving. Back at the lakeside, I was watching Will from a distance and ringing a cowbell like no ones business. Will ran up from the waterfront and we cheered him on. He transitioned to the bike portion and we cheered him on. When he came into view at the end of the bike and transitioned to the run, the final segment of the race, we cheered him on. All the while, that cowbell was clanging. When Will sprinted across the finish line, there was no stopping him (or the cowbell). Thinking about...
1 comment
Read more